A Light in the Darkness – New video by Aoede

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I CREATE TO HEAL
I’m Lisa Sniderman, and similar to many of us living with chronic illness, for 10 years I’ve been living and dealing with the challenges of managing a rare progressive muscle weakness autoimmune disease, dermatomyositis (DM) that if untreated attacks and weakens my immune system and muscles, trying to find the right combination of treatments, drugs, and therapies. The worst of it was a flare-up in 2010, when I was hospitalized for nearly a month with complete ...

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Aging, Chronic Pain and the Embrace of Life: A Lesson for us all

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My name is Stanley Rafal. I am 86 years old and married 66 years, with numerous pain problems.
As I look back at my 66 years of married life, I now realize when we were young, how robust and healthy we were.  Maybe it is because I have time to think about things now, so I worry. When we are young you are so busy you don’t even have time to think about it. You have in your mind more ...

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Balancing living with a chronic illness while running a business

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I graduated from Framingham State University and received my Bachelor’s in Fashion Design and Merchandising. After taking a year break after graduating in 2007, I wanted to further my education and to get my Master’s Degree in Business, because I always knew I wanted to be a business owner. While in graduate school receiving my Master’s, degree was when I started to experience symptoms like repeatedly falling, my leg would just give out and I would fall to the floor ...

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Overcoming Bullying and PTSD

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When people hear the term “post-traumatic stress disorder” or “PTSD,” what do they usually picture in their heads? The majority of people typically think of combat veterans who suffer at home with the memories of war. Others might think of survivors of major earthquakes, hurricanes, and other natural disasters. While these types of survivors certainly can develop this condition, there is one group of people that seems to be forgotten about and yet make up a significant portion of PTSD ...

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Recovery: it’s not a sprint- it’s a marathon!

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My name is Bill Hrncir and I am a stroke survivor. On December 9th, 2017, I celebrated my 11th stroke anniversary or “strokiversary”.

I was an athlete, a super dad, a loving husband, but overnight I became the poster child for stroke. I was running when I had a knock me down, take my voice away, throw me into a wheelchair stroke. After 11 years, I can finally say that I understand why I was chosen to survive such a trauma. ...

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Reinventing a better version of me

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I was diagnosed with breast cancer, without any lump or clue as to how this disease started or why, on the eve of my 40th birthday. At the time, my children were 6 and 9, my marriage was a bit of a sham and I was working my first full-time job in several years.

When the floor is taken out from under you during a life-threatening diagnosis, things change. Things change because they have to – there is no way you ...

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A kid’s epic tale

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When I close my eyes, I see that I have two ‘me’s. There is the me of almost 6 years ago. That kid who wanted to be everyone’s friend. That kid whose concern about the future was about which area of science was the most fascinating to study. That kid who was a kid, and did kid-like things, such as playing video games and collecting Pokemon cards. Then overnight, that me was replaced by ...
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Hope within the “new normal”

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On July 2, 2002, I was riding a friends bike to the store in Tannersville NY, and fell off onto my neck, shoulders, and back. I went to the ER they did a classic examination. X-rays, CT, etc., and sent me home, saying: only contusions.But they told me to follow up when I got back home. Which I did.

On September 11, 2002, shortly after waking up I had a stroke. My life had changed dramatically. I went to Mt Auburn ...

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Dreams can still come true!

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Being diagnosed with multiple sclerosis has enabled me to become the person I always wanted to be. I was diagnosed at the age of 28, in 2008, and while it was a shock, it was also a relief to know what was wrong with me so I could start being practical about how to move forward.

I took a good look at my life and I made that “bucket list” of things that I’d always wanted to do but ...

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